Pineville girl awaits funds for multi-organ transplant - KALB-TV News Channel 5 & CBS 2

Pineville girl awaits funds for multi-organ transplant

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 PINEVILLE, La. (KALB News Channel 5) - An 8 year old Pineville girl who is in need of a multi-organ transplant is now receiving help from a Louisiana non-profit organization. Just last week Kylie Bush missed out on an organ match due to lack of funds for air transportation. She now has those funds, but the waiting game is not over. 

Kylie may be in need of a pancreas, liver and small intestine, but she is living everyday to the fullest. Her nurse Vonzetta Jones says she's an inspiration. 

"Even when you’re having your own struggles in your own personal life, you can look at her and gain strength".

Kylie has short gut syndrome, and back in 2010 her body rejected her first transplant. She now has to travel back and forth to Omaha Nebraska for treatment, as she waits for a new donor. That's where Pay it Forward Networking has stepped in. 

Kylie's mother Joan Wallacer said, "her medical bills are pretty astronomical and she has a gofund me page so they've been promoting that and helping us raise money for medical funds. The transplant itself is 2.1 million dollars and then she's in the hospital for usually a year".

Until then, Kylie is eating through an IV. 

"One minute she can be fine and the next minute she can go down pretty fast," said Wallacer. 

Pay it Forward has been granting little wishes for Kylie, including an iPad and colorful bows -- even a new backpack to carry her IV in. 

"I kinda feel special, like its Kylie day," said Kylie. 

Nurse Jones said, "it doesn't take a lot to make her happy, but to see her get some of the things that she really enjoys, I'm just happy for her."

Wallacer said, "They have done some amazing things for sick kids and being a parent of a chronically ill child, just seeing that delight on their face it makes it worth it".

Though Kylie gets all of her food from an IV, her biggest dream is to become a chef, and make real food.

"When shes hshe'sg a good day, she loves life and she lives it to the fullest. She has a very strong will to live," said Wallacer.

The multi-organ surgery will be tough on her body, but Kylie stays positive, even in her toughest days. 

Wallacer said, "its hard, I see the disease catching up to her. We don’t think about tomorrow, we live everyday to the fullest".

Kylie said, "I kinda wanna, I wanna stay alive and make sure I get good care".

Kylie has received straight A's in school. If and when she receives her transplant, she says she'll use her iPad to Facetime her classroom so she can keep up with lessons. 

For more on Kylie's fight and how to donate, visit http://www.gofundme.com/9q8ef0 or  http://payitforwardnetworking.com/grant-wish.php
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